Partner Webinars

Upcoming Webinars – June 2019

Enjoying Leisure and Recreation – MS Society

Date: Tuesday, June 11th, 2019                                                      
Time: 8:00 to 9:15 EST

Presenters:

  • Alex Ng, Ph.D., FACSM - Exercise Physiologist
  • Chris Wegner - Person Living With MS

There is growing research to support that participating in leisure and recreation activities can help your overall health, better manage stress, reduce depression, and may help in managing other MS symptoms.  In this webinar, a renowned exercise physiologist will discuss the benefits of staying active while a person living with MS will share their personal journey to stay involved with dance, art, travel, and their other life passions.
With the right resources, mindset, and adaptations, MS doesn’t have to keep you from participating in activities you enjoy!

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Update on ALS Clinical Trials – ALS Canada

Date: Thursday, June 13th, 2019

Time: 12:00 to 1:00 PM ET
Presenter: Dr. David Taylor – VP Research ALS Canada

For the first webinar - in a two-part series - that will explore how clinical trials currently work, the importance of biomarkers, a new way of doing ALS clinical trials and the current state of experimental therapies in Canada and worldwide. Make sure to join the Q&A session that follows to get answers to your ALS clinical trial questions in real-time.

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Pregnancy and Multiple Sclerosis – MS Society
Date: Tuesday, June 18th, 2019

Time: 3:00 to 4:00 PM ET

Presenter: Dr. Sadovnick is a Professor of Medical Genetics and Neurology at the University of British Columbia.  She was the Director, endMS Western Pacific Research & Training Centre.  She was a Michael Smith Distinguished Scholar (2001-2006), an awardee of the MS Society of Canada National Award of Merit, (2007) and awardee of the Multiple Sclerosis Society of Canada Women Against MS Award (WAMS) award (November 2017).  

  • Dr. Sadovnick has been the Principal Investigator of several multicenter Canadian and International collaborative research projects on Multiple Sclerosis and pediatric Multiple Sclerosis as well as dementia.  She currently leads the CANPREG-MS Study, a Canada-wide prospective study of women with MS who are pregnant or who are planning a pregnancy.

Dr. Sadovnick was a Developer and then Co-director of the Genetic Counselling Training Programme at the University of British Columbia.  She has published extensively (over 300 articles in peer-review journals) and serves as a reviewer for a wide variety of medical journals and grant review panels. 

Dr. Sadovnick is a member of several National and International advisory groups and task forces for MS and dementia.
 

  • Ms. Rebecca Scott Rawn, as a communication and coaching expert, Rebecca strives to empower people to achieve their impossible, with support, coaching and laughter when they need it. She has served on the Boards of Equal Voice, a multi-partisan organization dedicated to electing more women to public office, the Ontario Long-Term Care Association and the Multiple Sclerosis Society. Having spent countless hours working with seniors, she’s taken to heart the advice of those who have ‘been there and done that’ – create meaningful connections, live the life that’s right for you and have no regrets. Her favourite thing to do is spend time with her two daughters and her husband in their home town of Orangeville, Ontario.

Part 1: Reproduction and Multiple Sclerosis 

Multiple sclerosis (MS) preferentially affects females, with clinical onset and disease course mostly occurring during the reproductive years.  Given advances in early diagnosis, there is no longer a long lag time from clinical onset to diagnosis.  Thus, decision-making about reproductive options is a real world concern for individuals with this diagnosis.  To date, there is virtually no prospective, population-based data on reproductive topics for MS.  It is important to discuss relevant issues from the time pregnancy is being considered to the postpartum period (loosely defined as 12 months after delivery.  

This webinar will discuss various issues in the decision-making process about reproduction (“reproductive counselling”) including topics such as the safety of MS therapies, fertility, management of MS prior to conception until delivery, breastfeeding, MS relapses, and psychosocial considerations.  

The ongoing Canada-wide project “CANPREG-MS” will be discussed and is designed to capture what is happening for all women with MS, regardless of clinical course, therapy, MS disease duration, and co-morbidities.  This is in contrast to the existing “drug-specific exposure pregnancy registries”, (whether retrospective or prospective) which provide limited or no information on factors (e.g. maternal age, previous pregnancy history, family history, ethnicity, maternal age, etc.) that can potentially separately or together result in an adverse pregnancy outcome.  


Part 2: Pregnancy and MS - My Experience

Rebecca Scott Rawn was diagnosed with MS in 2012, she was married in 2013, gave birth to her first child in 2014 and her second in 2016. She will share her experience of flare ups, meltdowns and workarounds as she managed through her pregnancies.

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Understanding the Vascular Contributions to Dementia – Alzheimer Society
Date: Thursday, June 20th, 2019
Time: 12:00 to 1:00 PM ET

Presenter: Dr. Cheryl Wellington is a Professor in the Department of Pathology and Laboratory Medicine at the University of British Columbia. Dr. Wellington’s research interests focus on dementia, traumatic brain injury, cerebrovascular dysfunction, and lipoprotein metabolism, in humans, animal models, and engineered human tissues. 

Dr. Wellington developed the first perfusible bioengineered model of the human blood brain barrier and large cerebral vessels. She also co-founded the CHIMERA (Closed Head Impact Model of Engineered Rotational Acceleration) platform of TBI animal modeling, which a unique system that uses non-surgical methods to deliver precise mechanical inputs to an unconstrained head and is now recognized as an excellent model of mild TBI and concussion. 

Dr. Wellington has published over 120 papers, trained over 35 junior scientists in a dynamic multidisciplinary environment, and has contributed to workshops held by National Institutes of Neurological Disorders and Stroke, National Heart Lung and Blood Institute, Alzheimer’s Association, and the Canadian Institutes of Health Research on dementia. She is a Team Leader within the Canadian Consortium for Neurodegeneration in Aging, Canada’s lead basic scientist in the Biomarkers Working Group of the International Traumatic Brain Injury Research Consortium, and Co-Principal Investigator in the Canadian Traumatic Brain Injury Research Consortium. Her studies have supported by the Canadian Institutes of Health Research, Weston Brain Institute, BrightFocus, Alzheimer Society of Canada, the Heart and Stroke Foundation of Canada, Alzheimer’s Drug Discovery Foundation, Pfizer, and AstraZeneca. 

High cholesterol, high blood pressure, and diabetes are not only risk factors for cardiovascular disease, but they can also have significant contributions to dementia risk. 
This webinar will discuss the vascular system in the brain and present new research findings that maintaining good cardiovascular health may be an important strategy to delay the onset of dementia or slow its progression.

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