Being trapped in your own body…ALS, also known as Lou Gehrig’s disease, is a progressive neuromuscular disease in which nerve cells die and leave voluntary muscles paralyzed. The total average annual cost to care for an ALS patient is over $150,000; this includes $49,108 in direct costs to buy mobility equipment and renovate the home, and $36,467 in lost income. People with ALS typically live no longer than 3.4 years.
THEN: ALS was first identified in 1869, but it wasn’t until 1999 that a standard rating scale was developed to measure a patient’s decline. The medical community and families had little information and resources to rely on.
Enter ALS Canada.
NOW: The past 15 years have seen an enormous growth in the number of research projects. As well as funding critical research projects, ALS Canada helps to improve the quality of life for people affected by ALS.
Living Proof of Donations At Work
The ALS Society helped Nigel VanLoan and his wife get $100,000 worth of equipment through their equipment loan program.
“ALS would not have been as manageable or the quality of life anywhere near as good [for my wife] without the ALS Society."